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About the Role
The Duchenne Nurse Educator (DNE) supports healthcare providers, patients, and caregivers through education on Duchenne Muscular Dystrophy (DMD), infusion processes, and Sarepta patient support programs. This role builds relationships to support patients and families throughout their therapy journey and collaborates with cross-functional partners to ensure compliance. The DNE also provides triage support during 24-hour on-call shifts, acting as a liaison between patient care teams and physicians.
Responsibilities
- Educate providers, infusion nurses, patients, and caregivers on Sarepta’s approved therapies for DMD and the infusion process.
- Serve as a recognized expert on DMD education, including genotype, deletions, and disease process.
- Stay current on the DMD environment.
- Collaborate with internal and external partners to ensure ongoing support to HCPs, patients, and families.
- Present compliantly to various audiences.
- Conduct programs for disease state awareness.
- Assist in improving the infusion experience for DMD patients by supporting infusion nurses and sharing best practices.
- Work with the SareptAssist team and specialty pharmacy to ensure a smooth transition from infusion center to home infusion for PMO therapies.
- Provide educational support to patients and families before and after initiating therapy.
- Attend advocacy meetings and represent Sarepta at industry conferences.
- Travel to training meetings, medical offices, and home health agencies as necessary.
- Perform other related duties as required.
- Triage telephone calls from patient care teams requiring medical guidance post gene therapy treatment during rotating 24-hour on-call shifts.
- Intake and interpret nuances of medical information to triage calls appropriately.
- Communicate and act as a liaison between patient care teams and an experienced physician confidentially.
- Document calls according to established guidelines (PV reporting).
- Direct patient care teams to the proper Customer Service Center based on the call topic.
- Provide day, night, and weekend on-call coverage.
Requirements
- Registered Nurse with a bachelor’s degree (BSN/BS/BA) from an accredited school.
- At least 5 years of relevant experience; Infusion, Neuromuscular, Pediatric Neurology, or other specialty experience preferred.
- Prefer 2 or more years’ experience in the pharmaceutical/biotech industry.
- Highly interested in educating on the disease state of Duchenne and working with healthcare professionals to support patients and families.
- Exceptional presentation, verbal, and written communication skills.
- Demonstrates team-based skills collaborating with cross-functional partners, both internally and externally.
- Competent and comfortable presenting in group and individual settings, live and virtually, with and without technology.
- Empathetic, friendly, and relatable, with effective communication skills.
- Comfortable speaking with patients/families and providing education and support.
- Willingness to work as part of a team in a demanding environment.
- Embraces continuous learning/seeks knowledge.
- Valid driver’s license and in good standing.
- Requires flexibility in rotating on-call coverage 24 hours/7 days per week.
- Ability to travel, including ground and air transportation, up to 60% within assigned territory is required.
- Must be able to travel to meetings, training, and other programs as necessary.
- Candidates must be authorized to work in the US.
Skills
- Duchenne Muscular Dystrophy (DMD) education
- Infusion process education
- Patient support programs
- Relationship building
- Cross-functional collaboration
- Triage nursing
- Medical guidance
- Communication
- Presentation
- Teamwork
- Continuous learning
Location
- Maine
- New Hampshire
- Vermont
- New York
- Massachusetts
- Rhode Island
- Connecticut
- New Jersey
- United States
Work Type
- Hybrid
- On-call coverage
Experience Level
- 5+ years relevant experience
- 2+ years pharmaceutical/biotech industry experience preferred
Education Level
- Bachelor's degree (BSN/BS/BA)
Salary/Compensations
- $136,000 - $170,000 per year
Benefits
- Physical and Emotional Wellness support
- Financial Wellness support
- Support for Caregivers
- Competitive compensation and benefit package
About the Company
- Sarepta is on an urgent mission to engineer precision genetic medicine for rare diseases.
- Sarepta holds a leadership position in Duchenne Muscular Dystrophy and is building a robust portfolio of programs across muscle, central nervous system, and cardiac diseases.
- Sarepta's next-generation siRNA platform is focused on chronically administered therapies for neurodegenerative and pulmonary diseases.
Equal Opportunity
- Sarepta Therapeutics is an Equal Opportunity/Affirmative Action employer and participates in e-Verify.