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About the Role

Denali is seeking an experienced, collaborative Associate Director, Regional Patient Access and Experience to serve as a dedicated support resource for patients, caregivers, and healthcare providers across the care continuum. This is a high-impact role focused on providing education and access support to ensure a seamless patient experience–balancing patient and community engagement with day-to-day program operations. As part of an emerging biopharma company, the ideal candidate will thrive in a resource efficient environment, demonstrate a clear passion for patient-focused execution and excel at collaborating across customer engagement functions.

Responsibilities

• Serve as the key regional point of contact for an ultra rare disease patient support program engaging patients, families and healthcare providers while collaborating with internal and external stakeholders to ensure a unified and seamless experience.
• Develop and maintain long-term relationships with patients/caregivers and their healthcare providers to support starting and adhering to therapy, including education on disease state, approved product materials, insurance navigation, and infusion logistics.
• Work closely with patients/caregivers, healthcare providers, treatment centers, specialty pharmacies, payers to support navigation of access and coverage barriers in partnership with appropriate stakeholders.
• Connect patients and caregivers to appropriate financial assistance programs and resources throughout their journey.
• Maintain a deep understanding of Hunter syndrome and the MPS therapy area, patient and community needs, available support resources and national patient access dynamics.
• Represent Denali Patient Support at local and national advocacy events.
• Develop and facilitate educational programs based on approved materials to inform patients, families, and community stakeholders about support services and access pathways, delivering meaningful information tailored to the unique needs of the patient community.
• Ensure the program operates seamlessly through regular monitoring, team alignment, and cross-functional communication to deliver a seamless experience.
• Assist in developing and maintaining key operational elements (e.g., process, technology) to support both the patient engagement and case management aspects of the role.
• Collaborate with internal and external stakeholders on trainings, ensuring alignment with compliance standards and approved content where applicable.
• Collaborate with key internal teams—such as Account Leads, Market Access, Medical Affairs, Patient Advocacy, and Compliance—to ensure program alignment and integrate field insights into strategy.
• Promote a culture of continuous improvement through feedback, process enhancements, and program improvements based on patient/caregiver and healthcare provider engagement.
• Act as a subject matter expert for cross-functional teams on topics such as: access processes, navigating healthcare systems, insurance plans, patient support offerings and operational elements of the patient experience program.

Requirements

• Bachelor’s degree, life sciences preferred
• Typically requires a minimum of 12 years of related experience with a Bachelor’s degree; or 10 years and a Master’s degree; or a PhD with 7 years experience supporting patients in pharma/healthcare, case management, social work or related field, with at least 3+ years in a patient support program, integrated healthcare provider or managed care setting desired
• Experience in rare disease, pediatrics and complex therapies preferred; with a demonstrated passion for patient-centricity and customer-experience
• Preferred experience in field-based patient engagement using approved materials and operating within regulatory guidelines
• Proven ability to effectively engage with patients, caregivers and healthcare professionals, demonstrating empathetic listening to build trust and foster ongoing relationships
• Skilled at effectively educating patients, caregivers, and healthcare professionals on complex topics using approved materials and ensuring understanding; preferred experience with developing, delivering patient education programs including navigating the internal review process
• Proven expertise with government and private payers; addressing access/reimbursement challenges and navigating complex insurance landscapes
• Success working in a matrixed environment, independently and collaboratively to achieve goals
• Strong problem-solving, communication and collaboration skills
• Ability to travel as required

Skills

• Patient engagement
• Case management
• Social work
• Patient support program
• Healthcare provider engagement
• Managed care
• Rare disease
• Pediatrics
• Complex therapies
• Patient-centricity
• Customer-experience
• Field-based patient engagement
• Regulatory guidelines
• Empathetic listening
• Building trust
• Fostering relationships
• Educating patients
• Educating caregivers
• Educating healthcare professionals
• Navigating internal review process
• Government payers
• Private payers
• Access/reimbursement challenges
• Insurance landscapes
• Matrixed environment
• Problem-solving
• Communication
• Collaboration
• Bilingual (Spanish-speaking) preferred

Location

• Remote

Work Type

• Remote
• Full-time

Experience Level

• Associate Director
• 12 years of related experience with a Bachelor’s degree
• 10 years of related experience with a Master’s degree
• 7 years of related experience with a PhD
• 3+ years in a patient support program, integrated healthcare provider or managed care setting

Education Level

• Bachelor's degree
• Master's degree
• PhD

Salary/Compensations

• $159,000.00 to $207,000.00

Benefits

• 401k
• Healthcare coverage
• ESPP
• Broad range of other benefits

About the Company

• Denali is an emerging biopharma company.
• Denali is committed to its core company value of unity by creating a diverse and inclusive environment.

Equal Opportunity

• Denali is proud to be an equal opportunity employer and does not discriminate against any employee or applicant for employment because of race, color, sex, age, national origin, religion, sexual orientation, gender identity and/or expression, status as a veteran, basis of disability, or any other federal, state, or local protected class.