About the Role
Provide senior leadership across data governance, data management, and information stewardship to ensure critical clinical, genomic, and research data assets are governed, protected, understood, and used responsibly. This strategic role requires accountability, direction-setting, capability building, and confident collaboration across clinical, research, technology, and corporate domains.
Responsibilities
- Provide senior accountability for data governance and information stewardship activities across complex, sensitive healthcare and research-critical data assets.
- Establish practical frameworks, standards, and decision routes to improve trust, consistency, and delivery.
- Set data governance direction across clinical and research domains.
- Establish sustainable data ownership, stewardship, and decision-making models.
- Lead the development of data governance frameworks, standards, controls, and roadmaps.
- Provide governance oversight for data release, data sharing, data tagging, participant withdrawal, metadata, classification, and data quality.
- Identify and manage data governance risks as services, datasets, and research activity scale.
- Influence senior stakeholders through clear, evidence-based recommendations.
- Chair or contribute to governance boards, steering groups, and delivery forums.
- Build data governance capability and maturity across teams, services, and communities of practice.
Requirements
- Significant experience leading data governance, data management, or information stewardship programs in complex environments.
- Ability to design and embed governance frameworks that are proportionate, practical, and trusted by technical and non-technical teams.
- Significant experience leading enterprise data governance or data management programs.
- Experience in developing policies, standards, controls, and data management frameworks.
- Strong understanding of data ownership, stewardship, data quality, metadata, and lineage.
- Experience working with sensitive, regulated, or research-critical datasets.
- Proven ability to influence senior stakeholders and lead through matrix structures.
- Experience in managing organizational change and improving data management maturity.
- Knowledge of DAMA-DMBOK or equivalent data management frameworks.
- Experience in leading, coaching, or developing teams and governance practitioners.
- Successful candidates are subject to a Standard Disclosure and Barring Service (DBS) check.
- Applicants must disclose any previous offenses at point of application.
Skills
- Data Governance
- Data Management
- Information Stewardship
- Clinical Data
- Genomic Data
- Research Data
- Metadata Management
- Data Quality
- Data Release
- Risk Management
- Stakeholder Influence
- Organizational Change Management
- DAMA-DMBOK
Location
- London
- Canary Wharf
- Cambridge
- Leeds
Work Type
- Blended working
- Hybrid working
- Remote working abroad (with approval)
Experience Level
- Principal
- Senior leadership
Salary/Compensations
- £102,000
Benefits
- 30 days’ holiday, plus bank holidays
- Additional leave for long service
- Up to 30 days of remote working abroad annually (approval required)
- Blended working arrangements
- Flexible working
- Enhanced maternity, paternity, and shared parental leave benefits
- Defined contribution pension (Genomics England double-matches up to 10%)
- Life Assurance (3x salary)
- Electric Vehicle salary sacrifice scheme
- Give As You Earn scheme
- Individual learning budgets
- Support for training and certifications
- Reimbursement for one annual professional subscription (approval required)
- Employee recognition programme
- Referral scheme
- Subsidised gym membership
- Free Headspace account
- Access to an Employee Assistance Programme
- Eye tests
- Flu jabs
About the Company
- Genomics England is a global leader in enabling genomic medicine and research, focused on creating a world where everyone benefits from genomic healthcare.
- Building on the 100,000 Genomes Project, we support the NHS’s world-first national whole genome sequencing service and run the growing National Genomic Research Library, alongside delivering numerous major genomics initiatives.
- By connecting research and clinical care at national scale, we enable immediate healthcare benefits and advances for the future.
- Our mission is to provide the evidence and digital systems so that by 2035 genomics could play a role in up to half of all healthcare interactions, whilst securing the UK’s position as the best place to discover, prove and benefit from genomic innovations.
- We are accelerating our impact and working with patients, doctors, scientists, government and industry to improve genomic testing, and help researchers access the health data and technology they need to make new medical discoveries and create more effective, targeted medicines for everybody.
- Behind the Healthcare and Research outcomes, Genomics England delivers through designing, developing and operating complex healthcare software systems.
- We're on the cusp of big changes with the real prospect of genomics becoming the fabric of everyday healthcare through the lifetime - from birth to old age.
Equal Opportunity
- Genomics England is actively committed to providing and supporting an inclusive environment that promotes equity, diversity, and inclusion best practice both within our community and in any other area where we have influence.
- We are proud of our diverse community where everyone can come to work and feel welcomed and treated with respect regardless of any disability, ethnicity, gender, gender identity, religion, sexual orientation, or social background.
- Genomics England’s policies of non-discrimination and equity and will be applied fairly to all people, regardless of age, disability, gender identity or reassignment, marital or civil partnership status, being pregnant or recently becoming a parent, race, religion or beliefs, sex or sexual orientation, length of service, whether full or part-time or employed under a permanent or a fixed-term contract or any other relevant factor.
- Genomics England does not tolerate any form of discrimination, harassment, victimisation or bullying at work.
- We aim to remove barriers in our recruitment processes and to be flexible with our interview processes.
- Should you require any adjustments that may help you to fully participate in the recruitment process, we encourage you to discuss this with us.
